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20 contributions to Dementia Caregiver Collective
The Dementia Caregiver Collective is an Incredible Help to Me
Thank you to the Dementia Caregiver Collective for all of the wonderful advice and support you have given. My mom is the early stages of her dementia and I am gradually increasing my caregiving. I am so thankful I am able to learn this information now instead of years down the road. I feel like I can give my mom better care because of the information I am learning now. @Robin Helm and @Donna Descoteaux provide practical solutions to very real caregiver problems. No over-my-head medical terms or feel-good mumbo jumbo. Just solid strategies to make life easier for the caregiver and their loved one. I highly recommend the Dementia Caregiver Collective to anyone who is helping care for a loved one with this terrible disease. It will help both of you.
3 likes • 6d
I love this place too. I so agree.
One Change Challenge: Protect the Need, Not Just Complete the Task
So Friday’s challenge is: Choose one recurring care task and ask: what need can I protect while we do this? Here are some examples of the need and possible solutions - Competence: let them do the part they can still do - Predictability: use the same order, same words, same time when possible - Safety: slow down, reduce rushing, improve footing or lighting - Identity: respect clothing, grooming, routines, preferences - Emotional security: reassure first, task second I know that you, the compassionate caregiver would like to maintain your loved one's dignity and independence, gentle reminder...Success is not just getting the task done. Success is getting through the task with as much dignity, safety, and connection as possible.
One Change Challenge: Protect the Need, Not Just Complete the Task
1 like • 6d
Love the challenge. Will have to implement that one when I find a place to try it. I will definitely find a place in the coming months. 💖
Become a Curious Observer: What is the 'NO' Protecting?
Sometimes “no” is not just rejection of the task. It may be protecting: Control/ privacy /identity/ dignity /predictability /physical comfort/ emotional safety or a sense of competence. Instead of: “How do I get past the no?” Ask: “What is the no trying to preserve?” As the observer use this 4 step process: 1. Notice the no. 2. Ask what might be threatened. 3. Change one thing that protects that need. 4. Watch what happens. If you think the issue is control: Offer two acceptable choices. If you think it is privacy: Cover the body, close the door, reduce the number of helpers. If you think it is fear: Slow down, explain one step, use familiar routines. If you think it is competence: Let them do whatever part they still can.
Become a Curious Observer: What is the 'NO' Protecting?
1 like • 8d
Love this podcast, "Become a Curious Observer." Every time I watch it, I learn something valuable. Such a treasure to listen to. Thank you for sharing your wisdom. The summary beforehand is great; it helps me listen instead of rushing to take notes.
Become the Curious Observer
Which part of the task is breaking down? Instead of "Why won't they do this?" Consider "Where does the task begin to fall apart?" Join in...the challenge today is to watch where your loved one hesitates, stops, repeats, becomes frustrated, or asks for help. Where does the task seem to break down?
Become the Curious Observer
2 likes • 29d
Really love the advice in this become the curious observer. being aware where in the steps a task has become more difficult, is great advice. It is something I could use for myself and my tasks as well as care giving. Great video.
Dementia Caregiving is Different: The Task May Be Harder Than It Looks
A task that seems simple and routine to us may require multiple cognitive, sensory, motor, and emotional steps for the person living with dementia, thus shifting from routine to difficult or unable to perform, and even causing frustration and behaviors. So, their refusal may just be a response to a task that's become too difficult. What is one task your loved one used to do easily that now seems to create frustration or resistance?
Dementia Caregiving is Different: The Task May Be Harder Than It Looks
1 like • Aug 17
my loved one does not cook any more. She often eats what's not good for her because she is too worn out to get up and make a sandwich or cook a bowl of soup or place some chicken in the oven to cook and often she forgets about it and burns things. This makes me think it is not a good idea to have her cook anymore anyway.
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Dee dee Lee
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29 points to level up
@dee-dee-lee-4067
I'm an entrepreneur, the Founder of AI for Everyday People, and a lover of French Bulldogs.

Active 6h ago
Joined Feb 18, 2026
Colorado
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