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Welcome
👋 Welcome to the Stroke-Proof Community! We’re building something special here — a movement to prevent 1 million strokes. To make this a safe, supportive, and inspiring place, we ask every member to live by this simple pledge: 🫶 Our Community Pledge ✔️ Respect first — we’re survivors, families, doctors, and prevention-minded people. Everyone’s story matters. ✔️Engage with with group. This isn't about one doctor lecturing a group. We all have important information and experience to share. ✔️ Evidence over hype — we share strategies backed by science, not fads or fear. To help others tell the difference we cite our sources, even if the source is just personal experience. ✔️ No diagnoses or prescriptions — support each other, but leave medical decisions to your own doctor or message me for a private consultation. ✔️ Protect privacy — what’s shared here, stays here. ✔️ No spam — we’re here to help, not hustle. ✔️ Stay positive & constructive — we’re here to build each other up and take real action. ✔️ Share the message - If you think this group has the potential to help you or others to avoid having a stroke, please share a link to others to join us.
How to Choose and Store a Good Extra-Virgin Olive Oil
We've spoken many times about the health benefits of extra-virgin olive oil (EVOO). But how do you choose a genuinely good one and keep it fresh? Why does this matter? Extra-virgin olive oil is an important part of the Mediterranean diet, which has been linked to a lower risk of heart disease and stroke. Choosing a good-quality olive oil and storing it properly can help preserve its flavour and the natural compounds that may provide health benefits. When buying olive oil, look for: • 🏷️ Extra virgin" on the label. Extra-virgin olive oil is made by pressing olives without using chemicals. This helps keep its natural flavour and nutrients. • 📅 A recent harvest date. Unlike wine, olive oil does not improve with age. Its flavour fades and its beneficial polyphenols (antioxidants) gradually break down. Look for "harvest date", "harvested" or "crop year", rather than relying only on the best-before date. • 🫙Dark glass or a tin. Light can gradually damage the oil and reduce some of its beneficial compounds. Dark glass and tins help protect the oil. • 🌍Clear information about its origin. Check where the olives were grown and where the oil was produced, not just where it was bottled. Some producers include a QR code that provides information about the oil's harvest date, origin, producer and, occasionally, laboratory results. This can improve traceability, although a QR code alone does not guarantee quality. • 📦 A practical container size. Choose an amount you can finish within a few months. A large container is not economical if the oil remains open and exposed to oxygen for too long. • 💧Filtered oil for longer storage. Unfiltered olive oil can be delicious when it is very fresh, but excess moisture and sediment may cause it to deteriorate more quickly. If you choose an unfiltered oil, use it promptly. Price and attractive packaging do not always guarantee quality. Words such as "pure" and "light" do not mean that the oil is fresher or healthier. "Light" refers to a milder flavour and colour, not fewer calories.
Meeting tomorrow at 16:00
Good afternoon. Just a reminder that we have a meeting tomorrow 4 to 4:30. This is a chance to catch up for 30 minutes and share our experiences and progress in managing stroke and reducing our risk of future stroke. I hope to see you tomorrow.
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Stroke-Proof the book - we need your help
Hi everyone, After listening to all of your feedback and all of our meetings over the last year or so we have broadened our understanding of what Stroke-Proof is about and come to see that we need to go much further than just prevention. Maggie and I are keen to write Stroke-Proof the book as a guide for Stroke survivors to help navigate the situation they find themselves in post stroke, but we need your help to get it right. We will be pulling in other professionals to help us write this and we'll need you all to tell us if what we are writing is helpful, but firstly we need to make sure we cover the correct areas. After reflecting on all that we have learned from you the below are our proposed chapters. Please let me know if these look right to you or if you think we should add or remove any sections or change the order. Part 1: The Beginning of Recovery 1. A Message of Hope - Recovery is possible - The brain can adapt and rewire - Progress often continues for months and years - Setting realistic expectations - Finding purpose after stroke 2. You're Not Alone - Stroke survivor stories - Different ages and stroke types - Lessons learned from recovery - Common emotional experiences 3. Finding Support - Stroke Association - Different Strokes - Stroke Proof - Online communities - Family and carers - When and where to seek help Part 2: Understanding What Happened 4. What Is a Stroke? - Ischaemic vs haemorrhagic stroke - TIA - What happens inside the brain - Areas of the brain and how they impact symptoms in stroke - Why symptoms vary between individuals - Dementia - the other major brain health condition  5. Tests and Investigations - CT brain - CT angiography - CT perfusion - MRI - Carotid ultrasound - Echocardiogram - Heart rhythm monitoring - Blood tests - What doctors are looking for 6. Why Did My Stroke Happen? - Causes of stroke - Blocked arteries - Atrial fibrillation - Small vessel disease - Rare causes - When no cause is found
Hospital discharge info
Apologies for all of the questions this week, but we really value your input. We are working on a hospital information letter which would be tailored to each stroke survivor with key information. I've attached drafts of 2 possible documents which we might use. One was designed by us and the other is from the World Stroke Organisation. Please could you provide feedback on both documents to help guide us in producing a final document which will hopefully be the best of both worlds.
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